CAUTION: RANTING AHEAD

Okay, I’m going to vent, you’ve been warned.

I have 3 non-neuro-typical kids ages 17-26. All of them still live at home and are not fully functioning adults at this time. All 3 suffer from depression, 2 from anxiety, all 3 have other issues as well. The older 2 kids are my kids and my husband’s step-kids which adds a little something to the mix. My husband has a good job that keeps a roof over our heads, food on the table, etc. etc. I work part time.

My eldest works part time and studies a computer book toward a certification… hopefully. Eldest drives and deals with her car insurance and oil changes and stuff. She helps around the house doing dishes, vacuuming, pet care. She spends some of her time writing what I think she describes as fanfic. Her writing, and the response she gets to it, give her a boost of self-esteem. I’m in favor of that.

Middle child goes to a local community college studying for an English degree at this time. (it changes sometimes) The only work she’s ever been able to get is work study at the college. She probably comes close to paying us back each semester for her classes, books etc. but that’s it. She paints gaming miniatures for money whenever she can. Work there is very sporadic. She’s good at it but it’s super niche’ and a luxury few can afford. She mowed the lawn roughly 1x/week for $20/week this summer. We support her financially, obviously. She has been trying to learn to drive for years but is in no way ready to be driving on her own. Honestly, she’s bad at it. Autism in her case means not being able to process everything and make good decisions quickly. I wish my husband would give up on it, it seems like something she shouldn’t do, but we live in a rural area and she either drives, gets us to drive her, or moves to a city with great public transport which is slightly complicated by her not being able to get a job or manage her life.

Youngest is 17. He’s doing pretty well so far this year even though his 2 best friends both moved on to different schools. He seems to be making other friends and is doing ok in his classes. He’s got an adulting class which makes him anxious because he hates thinking of the future, not sure WTF to do about that. I tell him there’s no pressure on him, just calmly look at all the options and think about what he’d like to explore, nothing carved in stone, no scary deadline, and so on. I’m working with him trying to get him to manage his daily life better. He needs to get up on time in the morning, which means getting to sleep at a reasonable hour, needs to learn to keep up with cleaning his room, doing his laundry and so on. He is interested in learning to cook to the point where he can keep himself happily fed, so we work on that. He’s great at coming up with marinades and he handles all of that, he’s learning to make certain dishes and to BBQ a bit. He handles most of the dog care. He doesn’t drive yet, doesn’t have a permit. He seemed like he wanted to but backed off for some reason.

So, they are all behind where they “should” be, where most kids are at their ages, we focus on encouraging them, trying to add to their responsibilities, being supportive. It’s a struggle, it’s frustrating, it’s hard not to despair sometimes. It super doesn’t help that my husband is surrounded by high achieving kids at work, constantly bombarded by beaming parents boasting about their amazing offspring. It’s demoralizing for him and it makes him more frustrated with the kids than he might be otherwise. For myself I could stand not to have my mother constantly tell me how awesome a job my sisters did at parenting, how great their kids are and how she worries so much about mine. STFU MOM! NOT helping! I have 2 sisters, we each ended up having 3 kids, one sister has 3 neurotypical kids, the other has 2 NT and one who isn’t. Would you look at the one non-neurotypical kid? Wow, he’s doing so great. He is, he’s doing great and I am over the moon that he is. I love him. What I can’t take one more freaking second of is the idea that I somehow failed my kids, which my mother CLEARLY believes and likes to rub in my face.

It isn’t fair at all to compare my sister and I and blame my parenting for the fact that my kids aren’t burning up the sky like all parents wish for their kids. My sister had so much help that I never got. Her in-laws were very involved and often took the kids for a weekend or a week, they babysat, they helped with expenses, they got involved in the kid’s lives in real ways. During her last pregnancy, our actual father moved to live in her state, in her town, and started helping too. His parents followed him out there and lent their support. My sister is smart and fairly driven, she got a degree and a a good job and had the built in support to be able to work while other people helped out with driving and watching the kids as needed. Don’t get me wrong, I am proud of her, she did amazing, but if I had the kind of support she did I might be amazing too. We will never know. With her husbands very good job and all the support they have been able to afford everything they have needed for their kids. Nothing has really been out of reach for them, which is so cool, I really am happy for them. I love my sis, her hubby and their kids. I can’t tell you how proud I am of them. I just don’t need to hear it so, so, so often. Because….

I live very near my mom. She did not babysit. She helped with rides, which I am grateful for, but we paid for those rides with the stress of dealing with her. She could not deal with the difficulties that come with dealing with my kids, my eldest was a handful when she was younger, and my mother made it worse by setting her off, blaming me for not handling her correctly, etc. I was so stuck. She was the only one I had to help at all and it came at such a cost. She helped financially at times, always with the understanding she would be paid back in full, which we did though it was difficult. My husband’s family was useless in helping with the kids. They didn’t care to be involved with the older 2, though his brothers enjoyed spending time with them on their rare visits. We spent years utterly strapped financially with occasional bouts of being on an even keel. We had my ex to deal with and the insanity of him trying to force the older kids into his religion, then his eventual rejection of the kids as they refused to join. All the work has been on us, we are exhausted, we are demoralized and we wish like hell we knew what to do.

But this is where we are. We have 3 grown and almost grown kids who are not where they should be with life goals, accomplishments and mental health. We have loved and loved and loved these kids and done our best with what we’ve had to work with. We had therapists, doctors, and we did what we could to expose them to interests but we couldn’t afford much. We’re still trying, we’re still working hard while most people with kids the same ages as ours are now able to brag about their kid’s accomplishments we get to answer “how are the kids?” with; “They’re doing ok. Eldest is working part time, middle is in school part time, and youngest is in HS… no the younger ones aren’t driving yet, no they don’t have jobs….” Progress is glacial.

Please, if you have amazing, neuro-typical kids who are doing wonderful, I know you want to brag, and I get it, I am truly happy for you, but please try to remember that some of your friends and family have kids who are not neuro-typical or have other challenges, and though they LOVE your kids and are happy for you, hearing about all the wonderful milestones your kids breeze through can be really painful. It is heartbreaking to work so hard, invest so much love and support, watch the slow, painful progress, and when you feel some small germ of hope because a friend was tentatively made, or a kid is finally taking 3/4 of a full schedule of classes, or at last broke 30 hours/week at their part time job… to hear that someone else’s kid has 20 friends and they are all going to do charity work together in a foreign land, or they just graduated, got their masters with a 4.0, or landed an awesome fortune 500 level job. etc etc.

I don’t know what my kids might accomplish, they are bright, sweet, amazing people. They aren’t where most people their ages are, they don’t have it all together yet, or even mostly together, they can’t even fake it, really. But they are kind and creative and I am proud of them. It just feels really awful when someone asks how the kids are and I say, “well, middle child joined the history club at community college, so that’s encouraging.” and they answer with, “Oh, this other kid just got accepted at 6 ivy league schools and has to choose which one to go to now. ” I know they don’t mean to make me feel terrible but I do. My kid did a tiny thing, their’s did a huge thing. I feel like my kid’s accomplishments don’t matter, it will never be enough, it’s all some kind of competition.

Ok, I’m done. I don’t know if I feel any better, but I’m done.

Slacker

OK, it’s official, I’ve been slacking off on this little blog. I got sick and busy and lost in my own head, a problem I suffer from from time to time. I’m quite prone to getting lost in my own labyrinth of a mind.

Let’s see… I’m ok with the new hair, it’s meh but it is pretty much for a Halloween costume so … whatever, it’s fine. I’m going to re-dye it soon, go lighter. got most of my costume worked out and now need some parties to go to. I have a couple of friends throwing parties so it shouldn’t be a problem. I’m no longer sick, just still tired and dragging, so improvement!

I’m a teen librarian, as you probably already know, and I run a Teen Advisory Board Group every month. This past Monday I had 9 kids show up! I usually get 3-4 so this is a big deal to me. My programs haven’t been super well attended but I think I am having some small impact. The kids love my ideas but showing up is a whole other thing, it’s tough I know, they have to have the motivation/energy and most of them need their parents to drive them, another hurdle, so I get it. (NINE!!! ^_^) They are very excited for the Harry Potter movie showing I have planned for December with Butterbeer and word puzzles which can be completed for a chance to win hand made house scarves …which I REALLY need to get working on. I have kids interested in staring an LGBT club, kids who want to get together for arts and crafts, kids who want a book club and …wow, that’s already a LOT of stuff for me to manage on top of all the other things we’ve got going. (TAB, Pathfinder and 1-2 random programs per month)

It’s kind of amazing having a job I care about and where I am making some kind of difference. I love it.

Good Day

I just finished reading a book called A Curse so Dark and Lonely: by Brigid Kemmerer and it was just wonderful. It is a young adult novel but don’t let that stop you, seriously, YA authors write some amazing books and I should know. It’s a fairy tale, sort of a new take on Beauty and the Beast but it is fresh and original. I took it out of my library yesterday and finished reading it tonight. That is unusual for me of late though it was once my solid M.O. If you like fantasy, fairy tales, adventure etc. I highly recommend this book.

My Bullet Journal workshop ended up having 3 sign ups though 1 of the kids was too ill to attend. I took the 2 who were there through the basics of setting up a BUJO and using it and referred them to the Bullet Journal Book and website as well as mentioning the hundreds of videos on the subject if they feel stuck or lost. They were both enthusiastic about it and I hope they will check back in with me sometime to let me know if it has helped them get organized.

Hair Disaster

Halloween is a high holiday around here. I was super bummed when the kids decided they were too old for Trick-or-Treating but my husband and I still dress up and go to parties, we wear costumes to work if it’s allowed or encouraged. Last year we went as Hogwarts students. We sometimes dress up in whatever’s easiest/lying around like zombies or cartoonish Vikings, sometimes my husband has some crazy idea that needs more serious shopping. A few years ago he went as Matt Murdock and I went as Jessica Jones, that was fun, this year he’s going as Crowley and I’ll be Aziraphale. Since I hate wigs I obviously use Halloween as an excuse to dye my hair whatever color I need to. My blond came out a little honeyed which is fine. I never try to copy whoever I’m going as, I’m looking to create my own take on a character. Since I am female so is Aziraphale and I thought an asymmetrical bob would be cute… oops. I look hideous and I don’t know what I can do about it. My son suggests shaving my head. He’s soooooo helpful.

My only hope is that this is hair shock and I’ll get used to it and start to like it. Until then I will be under the bed.

Thoughts While Waiting

I’ve removed as much junk as I can without a truck, gathered as many building supplies as I can without a truck, and installed new locks. Now all I can do is wait for Anita to email me back with a time she can come help me. Ok, maybe not ALL I can do… I need to get a truck, and someone to drive it, and people to help shift the desks and random junk and get all that out of there. Right now I have things ready to go in there as soon as it seems reasonable, which is not now, like an old futon for the loft once it has a floor and things like that.

I can’t wait for the space to paint and I can’t wait for my little napping spot. I had Another crappy night’s sleep last night. My sweet husband snores and I can’t win with the cats. If I let them in they don’t curl up and go to sleep they lick our noses and demand to be pet. If I shut them out they scrabble at the door intermittently through the night. Top those two items off with my body aches and acid reflux and, I hate to tell you this, I cannot remember my last truly good night’s sleep. I intend to escape the snoring and the cats when I need to. Sure, it will be pretty damn cold out there sometimes but I like the cold.

Even though it was his idea, my husband was getting a bit balky about the whole shed thing. Not the first time something like this has occurred. He gets instant buyer’s remorse from loads of decisions, the opposite of me, I am at peace once a decision has been made, my anxiety melts away. When we bought our house he was instantly overcome with doubt, did we pick the right one? What if_____???? (fill in with any house disaster imaginable, repeat until you run out of ideas.) I was filled with anxiety until we decided on this house and the sale actually went through. Once it was ours I was utterly at peace. To all his what ifs my, at least internal reaction, was: So what? Once it’s ours we just deal with whatever comes up, things are settled, decided, and IF we showed up and found the house on fire, say, and sinking into a swamp, my attitude would be, “Ok, first we put out the fire, then we shore up the side that’s sinking and call someone in here to make a hell of a retaining wall. We got this.” When he beats himself up thinking some poor parenting decisions might have contributed to our kid’s issues, I say; “These are the kids we have. This is where they are. It doesn’t really matter how they got here we just have to help them where they are. We got this.” I get where he’s coming from, it isn’t like I don’t have doubts too, or don’t beat myself up over the past, but I stomp on those doubts and try to deal with what’s in front of us. I don’t know, maybe I’m just better at being in denial over things and he’s just more honest with himself. It’s really quite striking how opposite we are in this area though.

Anyway, he was getting balky about my shed, as I started to say before the inevitable side-track, and near choked when I told him the estimate. ($15,000 for anyone tuning in for the first time.) But he had no reason for alarm, my budget is $1,500 and I’m not insane. He started saying ‘if only the older kids would move out…” but I stopped him. I said; “No, I’ve thought about this a lot, I’ve been thinking about this for Years. I don’t want my studio to be a room in our house, I want it to be separate, mine, only for me. I never considered a room in the house, I thought about renting space, getting a mobile home of some sort, or a shed.” And I think he heard me, and understood me, finally. Usually understanding between us is easy, it’s only lately we seem to be running into some small issues. I think it’s me, I think I’ve changed a bit, I’ve hit a point where if I don’t start taking my own needs seriously my life will be over and I won’t ever have put myself first in any meaningful way. I’m not some martyr, I’ve indulged myself in certain ways, buying books, getting certain items that make me feel spoiled rotten, but this is important and will truly help me be ME.

Meanwhile, my husband works a job that drives him crazy And goes to school for a degree to help lift all of us. I know, I do feel that it’s unbalanced, the hope is, in my mind, that he will finish up this degree in a matter of several months and then, with the time freed up, maybe he will write or do something else that feeds his soul. And I will guard his creative soul-feeding as fiercely as I have guarded his study time. Also, when I say that the shed/studio is mine, I mean that, I need to have control of it, but I do not intend to exclude him from using it. If he wants to study in the loft while I paint I would love that. I’m also making sure that I have the means out there to cook a bit and I fully intend to make meals just for the 2 of us, to light candles, put on music, and have it be a place of peace and respite from the world. A place where we can be alone for a while. Privacy has been ridiculously hard to come by in our house. With the kids all in their teens and 20s we literally never know when they will pop by our room with some request or news or nonsense. I know they could walk to the shed too but I think they might just be able to understand not to wander by with trivia and not want to make the slightly added effort.

Regrouped

That crazy estimate knocked me for a loop. Wow. Obviously I have no idea what time and labor and materials all cost. Crazy. I was super bummed but quickly realized that I need the space to work or I will lose my mind. So I determined to get working on it and see what can be done. The handy-person has agreed to work with my very low budget and focus on what is essential to me and we will deal with making it pretty later, insulating it later… I’m going to have to save up the money for each phase of this.

So I braved a trip into a nearby-ish city to visit a reclaimed building supplies store. I hate driving in practically any traffic, I hate too many lanes, I die a little trying to navigate in unfamiliar places. It spikes my anxiety. I managed to get the 2 essential windows for a total of $75, I also grabbed a small cabinet for $15. I emailed the handy-person and now I wait to hear back. She’ll be installing the windows, using plywood to create the 2 loft spaces, putting in a ladder or something, and moving the support for the lighting over for me. Those are the essentials I need handled. I will board over the interior window opening and paint the counter and shelves or wrap them in oilcloth or something and there’s my studio in it’s stripped down form. I’m not saying it will be comfy this winter but I’m hoping to get some use out of it.

F***!

I got the estimate… holy freaking fuck. $15,000.00. For Real. So I’m rethinking everything and trying to come up with a much shorter list of simpler projects so I can have the barest bones of what I need. I was utterly crushed when I go the estimate but now I’m determined. I’m going to have what I need, do things myself as much as I can, and not give up. CRUSHED. My budget was about $1,500.00. LOL

This is that day

You know when it’s the first day of school for your kid and you can’t find your keys so your spouse has to take the kid to school, then you tear the house apart looking for them, can’t find them, keep searching, nothing, call AAA to get your car unlocked because they MUST be in the trunk or something, then AAA tells you your membership dues are overdue so you need to pay $151, but wait! There’s more! Since your membership lapsed you will also have to pay a $30 same day charge?

Dropping my keys while retrieving stuff from my trunk officially cost us $181.00 plus I lost half a day to the fiasco. *headdesk*

Spending Slow-Down

I’m going to try to not spend money. I need to pick a start date and set some parameters but I’d really like to try to spend as little as possible in all areas. I feel like starting September 1st would be good, it’s the next good rollover point, and…

FOOD: I need to get back into planning our meals. I was doing fairly well at this for a while but it is weirdly exhausting to me after a while. I think a few new ideas would help and maybe I could designate a couple of days with themes like, pasta night, or soup & sandwiches, just to make a few less decisions. We’ll need to cut back on meat for sure, so expensive, and I’ll need to cook more from scratch, we’ll need to lean hard on the farmshare we already have and USE IT UP. Doable.

For items like clothing etc:

  • Try not to spend as a 1st step: mend what’s broken instead of replacing.
  • If something must be acquired or replaced get it free from “freecycle,” or “buy nothing.”
  • If those avenues are a bust try charity shops and thrift stores.
  • Borrow the item from friends if it’s only needed briefly.
  • Only buy new if all else fails.

There are some challenges, of course, there is back to school, but we already got the lad’s clothes, there’s just school supplies left and we have a lot in the house already so he may be covered. Then there are 3 birthdays coming up, my husband and both daughters, there will obviously be a few presents for that, and the winter holidays, there will be presents there too. In the past I have set a spending limit per person but we tend to weirdly “go big” on the holidays. My husband was raised that way but I wasn’t, I just embraced it because he was so happy that way. I’ve seen a little list to minimize spending that was something like: 1. something to wear, 2. something to read, 3. something they want, & 4. something they need. Maybe that would work. I’m going to look into what other ideas are out there. I make a lot of stuff too, gifts for people, I’ll have to work that into the plan and use what I already have to make those presents.

Good Taste

Ran the last Harry Potter craft of August. Had the teens making Monster Book’s of Monsters. It was fun, fairly easy and really cute. I made an extra one for my coworker who went nuts over them. She is very happy.

The girl my son likes was there. Her sister was sick with a fever and couldn’t come so she asked if she could make 2 so her sis could still have one. Of course I said yes, how sweet is that? What a good sister, what a thoughtful lass! My son have very good taste, she is kind and cute and awkward and sweet. What else could a lad want to see in a lass? My son wasn’t able to attend since the workshop was “full” too bad, he could have lent a hand with the second book. 🙂